8 Comments So Far

  1. Shouldn’t we be past the point where standard procedures connected to national networks, such as transplants are only paid for if they take place in certain places? What a painful and unnecessary layer to this trauma! If you give me your permission, I will start writing letters.

    xomichelle

  2. Hi Jackie – another awful day – I am so sorry and wish I had a medicaid person around that could help with all this stuff. I was just amaxed that when I see Ana with Natasha that she is still happy and chirpy – with the unknown held over her head. Cudo’s to you all for helping her feel so supported and to her for her incredible courage. Take care, Mary-Ann

  3. It’s really all so much to think about from my perspective. What makes you guys stressed makes me like, twice as stressed, plus the confusion of why you are stressed. Lol, it’s tough, but we are getting through it (slowly)

    • Ana, I hope you know, at least sometimes, that you do not have to think about it all. It IS a lot — and your Mom and Dad are thinking about it for you, taking care of you, in concert with the doctors and others at the hospital. I felt my head spinning reading the stuff about the paperwork mostly. But we can see you getting through this (slowly, as you say). While all of us wish WITH ALL OF OUR MIGHT that you didn’t ever get this tumor, in the big picture I feel very, very confident and sure that EVERYTHING is going to be GOOD and you are healing and will heal TOTALLY.

      I’m so glad you have started the blog, and I can’t wait to read more of your writing and see your drawings. Lots of love from me, Susan

  4. Jeez. After reading those first four paragraphs, I feel like I walked through a maze where every path came to a wall. I feel pissed off that they did not tell you guys you could have called in a prescription and that they put Ana and you through such a long trip. And the paperwork and insurance company confusion and obstacles. In those four paragraphs is a microcosm of the nightmare of the U.S. health care system. Is it too much to wish that you and Jim as parents could simply be able to focus on Ana’s care without all of this paperwork and going through hoop after hoop after hoop. I hope you can have a restful and good weekend, all of you!

    And that said about the excruciatingly frustrating and tough part, I think it’s amazing that Ana is doing the blog. I was talking about her creativity and talent today to a dear friend who asked about Ana. Her blog is such a life-affirming creation and shows her spirit, — and best of all, it has her voice. I love it already.

    Take care. Sending you and Jim and Ana and Emily love and thoughts of strength and everything you need to sustain you. I’m happy to hear more about the transplant team and Dr. Kato at Columbia. Ana is on her way to healing.

  5. I think it’s crazy that you all have to be dealing with the overwhelming insurance details on top of everything – outraged indignation all around!
    Here’s hoping you can clear some of these obstacles in the week to come. xo

  6. Holy crap. My head is spinning. But please remember 96% are damn good odds. I just met someone whose daughter had cancer when she was 6 weeks old (!) and she is doing great, is 10 years old now. Anyway, the mom wanted to make sure you know about Dr. Kato – he saved the life of a friend of hers – so he definitely has a great reputation out in the world.
    I think it is great Ana will be blogging too. Her strength blows me away.
    Strength and love to all of you.
    Steph

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