A Familiar View
Well, here we are in the hospital again. Ana was admitted last night around 8 pm. She wasn’t able to get to sleep until around midnight (nerves, I think) and then we had to deal with the pediatric resident coming in RIGHT when we fell asleep. I seriously wanted to punch her. She asked me ALL about Ana’s history and I was like, “Can’t you check her chart for this?” No, apparently they can’t. So I listed Ana’s medications (for the second time that evening because the night nurse had just come in to get that list from me).
I then grudgingly retold Ana’s history including the Broviac and the fevers, the rash around her port, the need for an MRI under sedation, and gave a brief recap of why Ana needs a liver transplant and where she’s getting it. The resident then examined Ana’s belly and said, “Is she always this distended?”
“No, she’s just been that distended since the tumor in her stomach grew to be 20 cm large.”
So we finally got some sleep (minus the vitals checks every four hours) and this morning we’re just waiting for Dr. Hochberg to come by and hopefully give us a timeline for the two procedures that Ana needs to get. We’re both restless and have been wandering around the floor – Ana made a pet rock at one of the craft activities this morning. I’m going to take her shopping at the gift shop in a bit.
We ran into some old friends from our original stay in the Child Life office. Lauren and Ella (Ella was Ana’s tutor). Lauren gave Ana a pile of holiday cards all of which contained the picture she painted! The cards are on sale at the hospital gift shop and the proceeds go towards the Child Life program. So buy some! The Child Life program has been a huge help to Ana (and me!) when we’re stuck at the hospital. They have all kinds of programs and goodies for the kids. Ana got a bag of branded Knicks stuff today (for example) which included a water bottle, deck of cards, ear buds and baseball hat. Child Life is also responsible for various events and arts/crafts activities (e.g., the pet rock this morning). So, if you need cards this year, consider purchasing them from the hospital. All of the artwork for the cards is contributed by kids who are or were patients here. I don’t actually see Ana’s design on the web site, so here’s a picture of it:
And here’s the back of the card which gives credit to Ana:
As I was typing this post, Dr. Hochberg came in so I have a hot-off-the-presses update. We are now waiting for the surgical team to come in and tell us if they can remove the Broviac tomorrow (they can’t do it today since Ana has already eaten). We are also waiting to hear back from Anesthesia about the MRI. So my news is that we are still waiting.
Also, I got a call from the coordinator at Columbia telling me she was able to schedule an MRI for this Saturday. I informed her that Ana was, in fact, currently at Westchester waiting for this procedure as an inpatient. We agreed to keep the appointment at Columbia for now and if Ana gets the line removed tomorrow then she can go home and Jim will take her to Columbia for the MRI on Saturday. Or, I suppose it is possible that we can chill out at Westchester and hope that Ana gets both procedures in the next couple of days. Really, this is a great exercise in my new philosophy of trying to relax and go with the flow. For now, I’m waiting for the surgeons and Ana is watching Spongebob.
Meanwhile, Jim has spent the morning at the mechanic after getting a flat tire on Sunday. We need 4 new tires and new brakes and one other thing – total cost = $1100. That doesn’t include a “small oil leak” which costs an additional $600 to repair. We’re putting that last repair off for a few weeks. It figures, right? We JUST paid off his car last month.