A New Week
I’m happy to say that I did my first group bike ride on Sunday even though it wasn’t at the level that I really wanted to do. I finished – third – in the 11-mile course of Ride The Ridge (er, not that it was a race or anything) and also managed to help out for a few hours before the ride (I checked in a bunch of the elite 50 mile riders). I thought it would be painful for me to check in all the riders who had been training and riding so much more than me the last few months, but it was actually really rewarding. The vibe was positive, and I was glad to be able to help out (if only a little bit). I saw some familiar faces and ended up feeling like I was part of the day.
Ana had a great weekend. She went to a birthday party and to a friend’s house for most of Saturday. She is so good at remembering to take her medication, I don’t have to remind her to pack it with her for trips and outings. She has discovered a new love for Starbuck’s decaf caramel lattes which may bankrupt me, but I can hardly complain since I’ve been mainlining mochas since last September. I guess it was bound to rub off on her. Ana had her labs drawn this morning so hopefully her enzymes will behave and they can reduce her steroids again.
She has decided to do a project on steroids as her final science project of the school season (they could pick any body-related topic they wanted). It’s really amazing to watch her do this research. Her fascination with science has grown tremendously since she got sick. I think this is an incredibly important way for her to take control over her illness. She has said (more than once) that she wants to be a doctor when she grows up. Her secondary choice is to be a famous singer. LOL
We spent Sunday afternoon (once I was done with Ride the Ridge), putting together a care package for Paisley and Addie Ascione, the two little girls that were in that terrible car crash on Memorial Day Weekend. They live pretty close to us, but we don’t know the family at all so our plan was to mail a box of goodies for the girls (I sent it out this morning).
It was so fun to put it together. Paisley and Addie are 4 and 7 – they’re exactly the same age difference as Ana and Emily. Shopping for them was a total and complete joy. Ana helped me pick a lot of the stuff out too – which was an added bonus.
Addie was completely unharmed, but Brandi and Gian (the parents) were both injured and Paisley is still in the hospital recovering from her injuries and being monitored closely. I have been able to connect with Brandi on Facebook, and she is in a state of mind that is actually very painful for me to read, because I have been there SO MUCH over the last ten months.
At one point she posted that Paisley had a fever and she wrote, “The update on Paisley today continues to be positive. She had been running a low-grade fever which has had me consumed.” I can’t underestimate how much I understand and relate to this. I can’t even tell Brandi not to worry because there is no possible way I, myself, can follow that advice. I am consumed. I am completely and utterly consumed by Ana’s illness.
But what a strong mother she is – and what a strong family who clearly has so much support. Please continue to lend them your prayers and thoughts, as they still have quite a journey ahead of them.