An Actual Health Update
Ana’s wearing a hat her Aunt Amy made for her last Christmas.
I just want to post an actual health-related update (as opposed to an anxiety-riddled rant that doesn’t really communicate what’s going on). Ana has been doing well this week. She seems to feel fine and she’s eating well though not gaining as fast as I’d like. She’s put on about 2 pounds since she left the hospital on 10/2.
Ana can now take her pills and withstand the Lovenox shots pretty effortlessly. She cuts the pills herself with a pill cutter and she swallows them quickly. Sometimes she even reminds me it’s time to take them. She also remembers the names of all her medications, including ones she got in the hospital. She had outpatient infusion of vincristine (a chemo drug) on Tuesday and had her bloodwork taken at that time. Her counts were good – meaning she did not need a blood transfusion and she’s not at super high risk for infection. However, the prednisone (she still takes 60 mg/day) does put her at risk for infection even with good counts, so we’re pretty much limiting her exposure to the outside world at this time. What I mean by that is we’re trying to avoid taking her out to public places, but she is allowed visitors! Come, visit, laugh, love (but make sure you’re not sick).
The plan has not changed in terms of surgery. That is, we don’t know what kind of surgery she will need until after the next course of chemotherapy (and the doctors may recommend a third or fourth course after that). The first course is now complete (three weeks of chemo starting with the VAC in week one and vincristine only in weeks 2 and three). This Tuesday she will start the second round of chemotherapy and be admitted to Westchester for one night (hopefully that’s all). Then she’ll get another CT scan around the week of Halloween or the following week. The scan will likely be done at Sloan Kettering and it’s called a triphasic CT scan. The surgeon at Sloan, Dr. Laquaglia, is the only surgeon (so far) who has said he may be able to save her liver.
We still have no tutor coming in but we have people working on that for us (thanks Michelle and Rose!) Ana has been going to class “virtually” via the use of her iPad – at least, a little bit anyway. She sat in on math class with her teacher Patrick yesterday and today. Here’s a shot of her home classroom. The kids in Ana’s class made her a quilt and they presented it to her today (that’s what’s on the screen below). Each square has a word that reminds the child who made the square of Ana. I’m kind of glad I wasn’t there in person to see it or I would’ve embarrassed Ana by sobbing like a baby.
And one more quick update. I ordered a bunch of silicone wristbands which Ana helped me design (she picked the color/style) and I plan to send them to everyone who donated on Paypal and to as many people as we can think of that have helped or donated directly. I hope I don’t miss anyone. If you don’t get a bracelet in the next 3 weeks or so – please send me an email!! I’ll also drop some off at the school. They haven’t arrived yet. I made a HUGE mistake when ordering them. Big oops. I ordered 300 wristbands that say www.healingana.com instead of www.anadooley.com and there’s no guarantee they can fix it. Luckily I was able to register the domain www.healingana.com and this now redirects to Anadooley.com (thank you, Nick, for setting up a redirect based on my panicked text message yesterday.) yeesh.