7 Comments So Far

  1. You have all been forced to muster every last bit of courage, fear, optimism, rage, joy, and devotion you have got within you by this thing on Ana’s liver. How could you not have that whole range of feelings about this donor surgery? I have been blown away time after time, by your honesty and your bravery, even when you are falling apart, Jackie. I hope this blog can be a resource to other mothers going through this, because as a mother of a child who has had multiple hospitalizations, I would much rather read the truth as you have told it in all its complexity.


  2. Crying. Again. What an incredibly unenviable position! I cannot imagine being in the position you are in. Like you, I spend a lot of time in my head. I over think things, and can send myself into a panic imaginging different scenarios. In the other examples you gave, you would simply react, without giving your brain time to interfere,

    We will continue to pray that you get THE CALL. Living right next door, anytime I hear your car or see anything that seems unusual, I stop breathing and wonder if this is it, the liver. You know if you get that call, and we’re here, we will help in any way we can. If Ana wants to see Lauryn for a hug goodbye and words of encouragement, call, even if it’s the middle of the night.

    In the meantime, keep breathing.

    • I will of course text you as soon as we get the call! I have the cats to think about, after all 🙂 Seriously though – I know you are conscious that we may have to leave QUICKLY and that Lauryn will be a mess if that happens without warning, so I’ll make sure you know right away – even if it means a call at 1 a.m.

  3. I’m still hoping a liver will become availble and you don’t have to do this., but of course you are willing to do this for your child. I would have done the same for you or for Lisa if need be. I still would for Ana if my my liver wasn’t past the donor expiration date..;) (I’m not crazy about the swimming scenario because I would have jumped in and we both would have drowned) One good thing..I’m feeling better, and more hopeful about being able to be with you more while you are in the hospital. I love you Bubbie

  4. Your situation differs than the scenarios in your post because those are instantaneous choices. As a donor the suspense is so drawn out and you have time to feel the weight of all the information you’ve gotten. The good news is, despite all the scary info, the odds of full recovery are much better than stepping in front of a speeding car or a bullet.

    Every time your blog shows up in reader I hope it is to say that the call came. Wishing you all the best and a swift move into a smoother period of life for the whole family.

    • Amber – I know it’s a different scenario. It’s way more drawn out – but it helps me clarify this decision to compare it like that. It’s like – oh…right! I’d take a bullet for her, so of course I can do this.

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