6 Comments So Far

  1. After reading this, I am struck by how much of a universe this is all unto itself. The language, the players, the locations, the dynamics, it’s just so far removed from your previous “normal” and not at all intuitive to people like me. I so appreciate your willingness to share all of this, like a mini-immersion in your experience of that day. xoxoxo

  2. Wow..I can’t believe you wrote such a detailed post after the day you had..I would have been on life support..Dad thought you were planning to give Ana your entire liver..he was quite relieved when I explained things to him..I love you, and needless to say I would do the same thing. Have I told you how proud I am of you? I love you..

  3. My head is swimming with questions and frustrations (they only cultured one lumen?!). But for now I’ll say — you’re doing a fabulous job taking care of Ana, coordinating her care, making an effort to understand all her very complex medical issues, and taking care of your family. Really. It’s evident that you’re a wonderful mother. Hang in there.

  4. I think I am going to need to read this post 2 or 3 more times to understand it. It is full of a lot of good information, and makes me feel hopeful. Still, I was just reading along and then these words stopped me in my tracks: “I’m pretty sure I would be this donor.” Whoa. That puts the high stakes of all of this in continued perspective, too. Thank you for the information-filled post, especially when you and everyone has to be so tired tonight, beyond exhausted. I write as part of my living, as you know, and your ability to form the thoughts, organize them, clarify the information, express emotion powerfully, and write these paragraphs at the end of an unbelievably long, tense day blows my mind.

    I’m so glad, after reading your last post, that you are going to get the help and support of a counselor. What could be more excruciating in life than a mother or father seeing your own child suffer? You and Jim are, in fact, heroes for your children, every waking hour doing all you can — and I’m sure they sense this. And they will see this even more as time goes on and Ana is well and gets back to her schooling and life path, and Emily gets her next karate belt (yay!) and thrives. Be gentle with yourself, and get some rest. I am praying and continuing to talk to Whoever is Up There to get Ana HIGH on this transplant list and on her way to healing.

    • Clarification: I cited the thing of being a writer because I am always struck by how you put these excellent posts together so amazingly, after these very long, long, stress-filled days. So I was talking writer to writer. Just blows me away. Secondly, I feel heartened reading about the intricate attention to care and high level of skill of Dr. Kato and this team. Having incredible hope, at the same time as feeling so much about Ana and you all going through this ordeal. Take special care.

  5. Wow! That is a lot of info. Yay for no more Lovenox shots! I have personal experience with them, and know they’re not fun. Also happy to hear that Dr. Kato thinks there is some chance that he might be able to do the ex vivo resection.

    Sorry to hear that she needs to be admitted for more tests. I’m sure none of you are looking forward to that. Try to hang in there. Things are moving in the right direction now.

    Let us know if there’s anything we can do to help.

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