Ana was discharged yesterday at around 6:00 p.m. and she was home by 8:30. They increased two of her anti-rejection meds including the prednisone. The plan is for Ana to get labs drawn on Monday and if her liver enzymes are going down, then they’ll taper the medication again. They’ve also added back a blood pressure medication called amlodipine (the brand name for this is Norvasc) because a side effect of prednisone is high blood pressure, which she is currently experiencing.
There is a small percentage of people that don’t respond to this initial treatment (intravenous steroids and an increase in anti-rejection medication). The next step would be to treat her with a more potent drug that would require a seven day hospital stay, but apparently it’s pretty rare for them to have to do this.
Since the odds haven’t exactly been in our favor in the past, I’m worried about this next possibility. Adding to my overall anxiety is the fact that Ana’s not feeling well again. She’s nauseous and has a lot of stomach pain. She was feeling completely better before the treatment – I don’t know if it’s a relapse due to the suppression of her immune system or a reaction to all the medication running through her system.
I’m really starting to understand the significance of that expression, “The cure is worse than the disease.”
I just want her to feel better. I’ll post another update tomorrow.