Coffee Cats and Labs
Ana’s liver enzymes this week were very slightly elevated compared to last week – well, two out of three of them were, but her GGT was down. They are reducing her prednisone to 10 mg though, which is a tremendous relief, but will be increasing her tacrolimus to 6 mg/day total (she was on 1 mg/day right after her transplant, but she also weighed about 20 pounds less). The side effects of this drug seem to be manageable – at least, so far. It makes her hands shake, especially in the morning and I think it may give her headaches if the level gets too high in her blood (which is one of the reasons they monitor it every week).
They want to see her tacrolimus level at about 10 and it was 6.8 this week. Stuff (not sure what exactly) effects how tacro is metabolized in the body. Things like alcohol and other medications can effect how the liver processes the tacro. Since all her medications are being monitored and she hasn’t been hitting the booze lately, I don’t know if any external factors are causing the low tacro levels in her blood. Tara (Dr. Martinez’s physician assistant) says these fluctuations are normal.
So we’re about wrapping up the first week of the summer and I’m cautiously optimistic that Ana will have some fun this year, and continue to recover. She has thrown herself into a new Etsy business (those of you who are friends with me on Facebook have already seen the many photos I’ve posted). It’s called Coffee Cats – she’s designed a bunch of sculpey cats with names inspired by various coffee beverages (e.g., Domestic Decaf) and she’s selling them on Etsy for $5.00 a piece. This seems like a good math lesson for her (she originally priced them at $3.00 each but realized that with the cost of supplies, time involved in making them, postage and packaging fees, she was actually losing money).
This one is a favorite of mine – Domestic Decaf. Check them all out on her Etsy Shop and if you need a cute gift that’s about the size of a quarter, please buy one. She really loves making them and has been putting her heart and soul into this new project. Here she is putting an order together.
So, this week Emily has been sick which is a change. She’s had a fever of 101 to 102 for the past few days and just today started feeling herself again. Oddly, she’s had no other symptoms except she had a weird eye thing (itchy, red, goopy eyes) that lead up to this week’s illness (we took her to the doctor twice thinking it was pink eye – drops and antibiotic cream didn’t help). Well, she did complain of a stomach ache and had no appetite. Now that she’s had the fever, I noticed her eyes are clearing up! She was much better today so I think tomorrow she’ll mostly be back to normal.
I fear illness in a new and especially neurotic way than I used to. If Ana gets whatever it was that Emily had, it could land her in the hospital. But so far so good. I also noticed that I was more worried about Emily than usual with this sickness. I constantly checked her temperature and worried about her getting worse. But it was more than just worrying about her getting worse – it was like…I had this constant fear that she wouldn’t get better. What if the fever spiked to 104? We’d end up in the hospital. What if it was a horrible anti-biotic resistant infection? What if, what if, what if… So, that’s new and I think I’ll have to try and pull myself back from this panic reaction that I’ve gotten so accustomed to having.