Tomorrow is Ana’s 12th birthday and, while I’d like to say that the plans for the day involve bringing cupcakes to her class and having dinner with family at the Gilded Otter in New Paltz…I can’t. That was the original plan. I was so proud of myself that I’d actually managed to get everyone together on her ACTUAL birthday. But today I got an email from Tara, the new Physician’s Assistant at Columbia.
Ana has to have a biopsy tomorrow. A birthday biopsy.
Ana’s lab tests from Monday showed elevated liver enzymes again and she’s also been sick for the last two days with a stomach bug. We’re also still not sure if she is positive for EBV (epstein-barr). Her lab tests from 5/4 (when she was admitted to the Kingston ER) came back positive for EBV, but her tests from this Monday came back negative. False positive or false negative? Who the hell knows. Dr. Martinez wants to make sure Ana’s not having any rejection issues, given all of the above.
Ana was very, very upset that she’d have to spend her birthday in the hospital getting a biopsy. What could I say? I cried with her. I’ve always gone way overboard for both the girls’ birthdays and I hate that I can’t make this a special day for her.
I think we’re lucky for a lot of reasons. We’re in good hands at Columbia and they’re being cautious (which is a good thing). She’s three months post-op and doing well, for the most part. She was given the wonderful gift of a liver and a second chance at life. A birthday is just a day. She’ll still get presents and a cake.
Tomorrow will be hard, but we’ll get through it. I’m going with her and Jim is staying home with Emily. Ana and I have to hit the road no later than 5 a.m. so we can get to the hospital by 7 a.m. She’s scheduled for the biopsy at 9 or 9:30 and the procedure takes about 20 minutes. She’ll then be in the recovery room for four hours. They will most likely let us go home as long as everything goes smoothly in recovery (so prayers and white light, please).
There is a precariousness to our lives that is exhausting. There is absolutely no way to plan for anything. I’m afraid to say she’s doing well because I have no idea if she’s doing well, or how long she’ll be doing well before the next crisis.
I know control is mostly an illusion, but it sucks to be reminded of that every other day. But, bottom line, I’ll spend the day with her on her birthday. I’ll try to make her laugh. Hopefully we’ll be home before dinnertime tomorrow.