Devil in the details
Today I got an email from Dr. Kato’s assistant (Dr. Kato is the surgeon at Columbia that does the ex vivo procedure) notifying me that he is not, in fact, covered under CDPHP. I guess I shouldn’t assume anything. Like, for example, that the Chief of Adominal Organ Transplantation at Columbia is not, in fact, one of the surgeons that CDPHP covers at the SAME hospital that CDPHP wanted to transfer Ana to without consulting us first because Columbia is one of their “centers of excellence.”
Since it’s Saturday and the entire healthcare system is not available to me until Monday, I can’t call CDPHP to ask the firestorm of questions I now have. I also can’t call Columbia’s insurance person to see what she has to say. I also can’t call the emergency Medicaid person at Westchester to see if there’s a remote possibility that Ana can still get the transplant there since CDPHP is being such an unholy piece of shit about this whole thing.
I have questions upon questions. I feel stupid for not knowing the answers. I feel guilty, as though I should’ve been able to anticipate this was going to happen. I feel powerless, because I don’t know where Ana will get her transplant, but I want to get her on the transplant list. I don’t know who the surgeon is going to be yet because CDPHP is in charge of my life right now. How fucked up is that?
I wonder what else isn’t covered at Columbia. Ana will need to be followed by either an oncologist or a pediatric hepatologist (liver specialist), so it’s kind of important that these people are covered. If they’re not, will CDPHP approve them since they’re the ones insisting we go to Columbia for the transplant in the first place?
Will CDPHP approve Dr. Kato if he does the transplant since he’s at Columbia and I assume there are other liver surgeons there who are covered?
Why does CDPHP hate me? (stomping feet)
I’m sure they don’t hate me. I’m sure it’s all procedural and everything will be just fine. I’m just not handling it well, okay? I crawled into bed and didn’t want to come out for a good hour until Ana scraped me out of bed with a spatula and we went shopping. I bought some stuff at Home Goods which made me happy, and organized Ana’s medical supplies. Here are the before and after pictures.
This was our system BEFORE….
Big collective sigh of relief, right? I’m particularly proud of the spice rack organizer that I turned into a medication organizer (the white thing on the right). Ana even wrote out labels by hand.
So, I guess I’ll try not to freak out anymore until Monday. No promises though.