10 Comments So Far

  1. Want to be sure that you have this information and number for your incredibly frustrating insurance co. experiences. If you don’t get a satisfactory answer, please let me know:

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    Nurse giving patient medicine
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  2. Oh Jackie- I’m sorry. Nothing’s worse than when your child is sick. Be strong. You and your family are loved! It’ll be terrific to meet. Maybe I can come too and meet you and Anna when Jon gets back from speaking.

  3. What a day of frustrations! And to be back to that place of wanting to scream, “Just give me a definitive answer!!!!” I feel for you.
    As far as the screw up at Sloan with the contrast, that is very far from my experience. I often had a long wait for a doctor visit, but never with any scheduled scans. And everyone always seemed competent and organized- not to mention compassionate. I am so sorry Ana got bounced around. I mention this in case you wind up back at Sloan. Don’t judge it by this experience. I really think you’ll all be in good hands.
    But as always, yell and kvetch as much as you need. Thank you for sharing.

    • I’m suddenly thinking “kvetch” implies whining. If it does please substitute the word “rail” in my last comment. Even when you sound your weariest, Jackie, you don’t whine. (I went to St Benedict Joseph Labre grammar school. I should leave Yiddish to the experts!)

  4. I’m sorry that it was such a long, exhausting day of waiting, leading to even more waiting. Although it was not what you were hoping for, the good news is that either way, it is operable. Hang in there. I hope that the tumor board has more encouraging news for you.

  5. Hi jackie – I was so hoping that yesterdays exhausting day would bring you to a point where a decisioni could be made but it appears that it has once again created mote questions. Thank you for keeping us all in the know, I really appreciate the time and energy that it is taking you to do this. I hope that you get some results soon, take care and love to all, Mary-Ann , Natasha and family

  6. Jackie, This is incredibly clear especially given your exhaustion. Thanks since we did not want to discuss this disappointing news around Ana. Love to you all.

  7. Sounds like an unbelievably long day of events to absorb. I like the news about the extra vein. Get some rest, Dooleys.

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