Thanksgiving Day was very low key and relaxing. It was actually kind of awesome. We spent the day at Janne’s with Amy and Stefan and played a nice game of Scrabble after dinner.
Ana started feeling tired around 7:00 or so and asked to go home. We thought she was just bored (usually her cousins are with us on Thanksgiving, but they were with their father this year). She also began feeling very cold which is unusual for her, so I took her temperature when we got home, not really expecting her to have a fever. Well, she had a fever of 101.3. I gave her Tylenol and put her to bed (it was around 8:30 at this point).
I then emailed Dr. Hochberg who said to watch her temperature and if it went above 101.5 to bring her to the E.R. It went down to about 99.1 after an hour and she slept fine all night and woke up this morning with 99.1 again. By 1:30 this afternoon her fever was completely gone. I called the on call oncologist and she said the same thing – watch the fever and if it goes above 101.5, bring her to the E.R. She had a normal temperature for most of the day, but then it started going up again about 5:00 pm (99.6) and at 7 p.m. it was 101.1!
This is exactly what was happening during Ana’s hospitalization before she began getting Prednisone – the tumor speeds up her metabolism and also causes her temperature to go up. Dr. Hochberg doesn’t feel that we should start Ana on Prednisone again because it was raising her blood sugar. She said, “The tumor needs to come out.” Yeah…WE’RE WORKING ON IT!
We gave Ana Tylenol right before bed and within 15 minutes her fever was down to 99 again. I hope this means the fever is due to the tumor and not because of a central line infection. That damn line makes me crazy. One of the first signs of a line infection is fever, but one of the primary side effects of the tumor is also fever so there’s just no way to know what’s going on.
Ana was in good spirits tonight even though she may face another day at the hospital tomorrow with the very real possibility she’ll be admitted. Although, she’s not exactly happy about being dragged out to Westchester yet again.
She said, “I hate my life.”
And I said, “Do you really?”
And she looked at me with a barely controlled eye roll (as only a tween can do) and said, “Um, yeah!”
So I said, “Well, you don’t seem that upset right now.”
And she said, “I guess I’ve accepted it.”
Kind of confusing, but I think I get it.