Good News All Around
Ana got her labs drawn on Monday in New Paltz (Donna found the vein on the first try – yay!!) and Ana was home and logged into math class by 9:15. So today the test results were back and I spoke with Patricia, a nurse practioner on the team at Columbia (Dr. Martinez is on vacation, and so is Maria – the physician’s assistant we normally communicate with on a day to day basis). So ANYWAY, Patricia said Ana’s bloodwork looks great! This includes her CBC (blood counts) and her liver enzymes.
This is awesome news, particularly since she hasn’t had bloodwork done in two weeks (well, not including the blood that was drawn but is now forever lost…) The only thing that wasn’t great was her tacrolimus levels. Tacrolimus, also known as Prograf, is the anti-rejection medication that Ana will be on for the rest of her life. The level was at about 4, and it needs to be between 8 and 10 this soon after transplant. So Patricia told us to give her a higher dose of Tacro at bed time and we’ll get her blood drawn on Monday again. Patricia said it’s normal for the Tacro levels to fluctuate – it’s not something that will ever just be “set it and forget it.” Right now she will get blood drawn every week, eventually it will be every other week and then we’ll move to monthly. I’m not sure how often she’ll need to get blood taken once she’s a year out from transplant.
I just felt a wave of anxiety when I realized that she will always need to get her blood checked. It is now as much a part of her life as dentist visits and yearly physicals. Okay…moving on…
Ana’s stomach still looks slightly distended, but she does not seem to be retaining fluid in her belly the way she was a couple of weeks ago. We’re not being very careful with the sodium, I hate to admit. It’s just that we really want her to gain weight! She looks smaller than the cat!
And, more good news. The second concert in the Healing Ana Concert Series is planned for April 28th at 3:00 p.m. This concert, titled “Sing It For Your Sister,” features some extremely amazing female vocalists and is the brain child of my good friend Elizabeth Mitchell (whose voice could tame lions – seriously). I created a static page on the blog with details of the event HERE. If you’re local, I hope you can come! Some of the musicians participating include Elizabeth Mitchell, Amy Helm, Ruth Ungar, Rachel Loshak and Debbie Lan (of Grenadilla). Ana and Emily will be singing a duet. A DUET! It’s a mother’s dream! This is going to be great. I can’t promise I won’t sob like a baby through most of it though. Bring extra tissues, please.