Posted 12/26/15 at 10:00 a.m.
I know I keep saying this, but…thank you. We have truly been carried by all of you throughout this holiday season – able to buy gifts without worrying and not stress over the expense of the two long hospital stays Ana endured in November and December. We’ve been showered with gifts and love throughout Ana’s illness, but this past month which has arguably been the darkest time since Ana’s original diagnosis, has somehow let the most light in.
We have a wreath hanging on our door that makes me smile every time I see it (Thanks Ascione family). Thanks to Liz and Babs for the gift of our Christmas tree. We had extra presents beneath the tree for the girls (including a new pair of Beats Headphones for each of them, (thanks Kelly, Ian and Cleo) gorgeous pajamas (Thanks Marie) and many fun games courtesy of Enchanted Toys in New Paltz. We have fresh flowers all over the house (Thanks, Kelly). We had chocolate pecan pie for dessert yesterday (thanks, Hensley). Cash donations continued to come in over the last few days even though that link to Ana’s Paypal account isn’t easy to find – it has paid for more presents, our Christmas ham, a bill or two and the vast majority of it is still in Ana’s wish fund ready when she’s ready for it…)
Today will be special too. Someone moved mountains to get Ana a private screening of “Sisters” in our house (she loves Tina Fey and Amy Poehler). She isn’t quite up to going to the movies, so we’re bringing the movies here. Tina Fey even sent Ana a private message (I wish I could post it!!) Thank you, fairy godmother, for pulling some strings.
Every room in our house contains something that reminds me that you are continuing to hold us up. I’m sorry if I left you out of this thank you – please know that I’m grateful for every card, every prayer, every gift given with love and hope. I hope you’re all enjoying the holidays and taking lots of pictures (I wish I’d gotten more yesterday).
Ana’s feeling a little better each day. We’ve begun weaning her off the oxycodone completely because her stomach continues to bother her – she’s bloated and can’t eat much. She’s been on oxy since her first hospitalization on November 27th, and if we successfully stop the oxy this week, it will be the first time since that awful day when we rushed her to the Kingston E.R. that she’s had relief from pain without the help of narcotics. She has a follow-up appointment with Dr. Martinez on January 4th, so she won’t be back to school that day, but hopefully the day after that. Her mobility is good and since the weather is so nice, I’m going to try to get her outside for a short walk today or tomorrow. Love to you all and happy holidays!!