Home Again (Again)
I’m overjoyed to announce that Ana was discharged today around six and she’s home! She looks exhausted. I told her she should stay home from school tomorrow to rest and she said, “From what?”
And I said, “Oh I don’t know. Three hours of anesthesia?”
She thought about it and said, “Yeah, I guess you’re right.”
SCORE ONE FOR MOM!
I feel like we are all exhausted and emotionally fragile right now – including Emily who had a MAJOR homework meltdown today (it didn’t help that I was yelling at her saying, “Well how can you possibly know how to do this if you don’t know what division is??”) I won’t go into details. It wasn’t pretty.
Dr. Hochberg still wants to see Ana every other week to check on her, but at this point we’re not sure that makes sense. The communication at Westchester is horrible even when you don’t consider that they’ll have to deal with an outside institution. I mean, they couldn’t find Ana’s blood type and get it to Columbia so Ana could be listed for transplant. How was that piece of information not readily accessible?
I hate to leave the security of Dr. Hochberg. She’s been Ana’s advocate from the beginning. She’s the one who pulled the right levers and got Ana the procedures she needed this week. But I’m also extremely concerned about the poor communication at Westchester. I’m not saying that there aren’t brilliant physicians there. But a hospital that is still mired in a paper-based medical records system is a hospital that is prone to error.
That’s a gross understatement. let me clarify with this bit of advice…
If some day you find yourself in the unenviable position of having to get a kidney removed, make sure you write “DO NOT REMOVE” directly over the healthy kidney – in permanent marker.