We’re all home now. We tucked the girls into bed about an hour ago. Ana is exhausted, but was able to climb the stairs to her room. She is ravenously hungry, which is good but also likely due to the Prednisone (she’s on 30 mg/day right now). She is craving cheese again, but we have to watch what she eats because she still has an ostomy bag on her abdomen because she’s still draining (though fluid output is much less than right after surgery). She is a fragile bird, but so, so strong. She seems so happy – so much more herself than she has been in months.
I’m actually a bit of a wreck. I’m worried about germs and complications and all kinds of things. I am afraid to breathe a sigh of relief. It’s just that simple. I feel as though I could literally sit by the foot of her bed and watch her all night long – as if that would make a difference. She’s going back for a follow-up (as an outpatient) next Wednesday and they will adjust her medication at that time. Oh, and speaking of medication, here’s what they sent her home with:
The pharmacist threw in the watch for free. I’m not sure why. She literally has to take like 17 pills in the morning and 13 at night. She took them ALL tonight without complaint. She is really an amazing kid. So each week they will adjust her medication and the goal is that within three to six months, she’s down to one or two pills a day – forever.
The prospect of forever terrifies me. But for now I’m trying to keep these fears of the far future under control so I can remain focused on the near future. Ana is home. Ana had her transplant. Ana is feeling better. Wow.