Tara (the physician’s assistant that works with Dr. Martinez) emailed yesterday and confirmed that Ana’s liver enzymes are DOWN AGAIN! She reduced Ana’s prednisone to 5 mg/day which is where she was before her rejection episode in May (and was experiencing very little side effects at that dose). Her tacrolimus level was also up (this is good) which is what they want to see.
Still no word on the MRI results. I held up the process by forgetting to bring her old scans with us to he MRI place on Monday, but I dropped them off on Tuesday and the radiologist (supposedly) was going to read the new scan today and fax the report to Dr. Hochberg. I’ll post an update as soon as I know more.
Also a quick update on Make A Wish. Jim and Emily finally got their passport paperwork submitted yesterday and hopefully we’ll have their passports in a couple of weeks. I emailed our Make A Wish coordinator, and she said it’s fine that we’re taking this long to get things done – the wish is still on! I requested that the trip be scheduled for next spring or early summer since we need to wait about a year after Ana’s transplant before she can travel for any length of time. As of now, she wants to go to Atlantis in the Bahamas. So, I have a little less than a year to get in shape! We have literally never had a family vacation. I mean…never. I can’t wait for this!