So, we’re officially on Hospital Time, which means I have no idea what’s supposed to happen or when. I’m sure someone has a schedule somewhere and they’re moving all the pieces around the board with confidence (damned if I know). I’m just happy that Ana slept a bunch and drank a sip of juice this morning.
Ana had the biopsy at around 4:30 or 5:00 yesterday (nearly four hours after it was scheduled) and it took about ninety minutes. Dr. Kato opened her old incision (from the transplant) about halfway–a good 7 inches or so, although I haven’t seen it yet because it’s covered with gauze.
For some reason I thought this was going to be a very minor incision (a one inch cut? laparoscopic?) and not quite as invasive as it actually was. Dr. Kato explained that he’d need to make a larger incision so he could remove both abdominal nodules which weren’t side by side. I got this news about an hour before Ana went into the O.R. and it’s a prime example of why it’s important to trust your surgeon. I did have a brief vision of grabbing Ana’s hand, running madly for the elevators, and screaming, “SCREW THIS!” but it passed quickly. Ultimately, I know that Ana is in excellent hands. Ana’s concern was that he would ruin her scar, but he said he could actually make it look better. So she went in and ninety minutes later she was done.
Dr. Kato was able to fully remove both nodules and they’re now in the murky depths of Pathology where they’ll hopefully find some answers for us. That should take anywhere from two to four days and I seriously CANNOT worry about it right now.
I was allowed into the recovery room at around 7 p.m. and Ana was in a lot of pain. They gave her a pain pump (it’s a machine that allows her to press a button when she’s in pain and give herself medication, but it’s regulated somehow so she can’t overdose). After about an hour, she started feeling better and actually wanted to eat (she hadn’t eaten since around 9 p.m. the night before), but they wouldn’t let her have anything–not even a drop of water–until she got to the floor at around 8 p.m. and I jumped up and down until the resident called the liver team who grudgingly allowed her clear liquids.
She had a decent night, as much as that’s possible in this environment, but continued to struggle with pain. There have been a steady stream of doctors coming in this morning (as I type this) to check on her (pediatric resident, another pediatric resident, anesthesiology, liver team…and three people from the pain team just strolled in). A vampire came this morning around 8:00 to draw blood. She’s currently running a low-grade fever of about 100.5 which is likely from the anesthesia and she has a killer headache (from the withdrawal of some of the pain medication, apparently).
Dr. Martinez stayed a while and ended up approving a regular diet, but now Ana’s not hungry. She has to start eating again slowly since she’s not moving around much. Her intestines are still sleepy from the anesthesia (whatever the hell that means). There are no guarantees Ana’s going home today. It all depends on whether or not her pain can be managed via pills as opposed to I.V. I think they want to watch her temperature too. If it goes above 101, then they’ll need to do more labs to check for infection.
Surgery sucks. Abdominal surgery is the worst. I keep catching myself thinking things like, “I hate this” and “it’s not fair that she has to endure this” but I can’t think like that. It’s too negative. It makes me get angry at things and people that don’t deserve my anger, and it’s not at all helpful to Ana. Instead I’m trying to remember that we’re in an excellent facility and Ana’s getting superb care. I do, however, regret that I gave up drinking coffee about a week ago. This herbal tea just isn’t cutting it…