I Want To Go Home
It was a mixed bag today. Ana had lots of wonderful visitors come throughout the day and she was practically showered with gifts. Thank you all!! These visits are so incredibly important to keeping her spirits up and keeping us connected to you, our source of support and strength.
This is all so new and it’s inevitably going to be a bumpy road. Today we hit one of those bumps when everyone left and Ana had a lot of pain again (due to the laxative). She had a couple of hours of intense discomfort and pain, and she just couldn’t hold it together. She said she wants to go home. She cried those big crocodile tears that we all hate to see our kids cry, and she wanted to know why this was happening. Why is it so unfair? She stomped around the room and it was really all I could do not to burst into tears myself.
Well, okay, I burst into tears. I want to go home too.
We got through it, and ended the night with our normal happy chatting. Ana had a long day and I think that seeing everyone leave when she’s still stuck in this hospital room, combined with more pain, was just a lot to take on. She’s also very upset about the prospect of losing her hair. She’s really obsessing on that.
I asked tonight’s nurse (Nicole – the best one yet!) if there was another child that Ana could talk to who is going through the same thing – someone who is just as stuck as she is. Nicole says there is a boy Ana’s age who is currently getting treatment and he is extremely optimistic. She’s going to introduce them tomorrow, as long as Ana wants that.
Also, one small update regarding where things are headed. I spoke with Dr. Hochberg briefly today and asked her how long can Ana expect to be here before discharge and it will be at least a month..from…today. I guess that’s not surprising, but I so want this poor kid to go home. She’s going to have another biopsy on Wednesday and get the central line put in at that time as well, so Thursday and Friday will be rough. Then, assuming we get the diagnosis and treatment plan by the end of next week, Ana would start chemotherapy the following week. I won’t go into too much detail about that yet since treatment is dependent on the diagnosis.
As always, thanks to you all for your support. We will be announcing a fundraising page shortly which will enable us to raise money for medical expenses including the $9000 health insurance deductible. So many of you have expressed the desire to give us money towards expenses and that will be the best way to do it.