Living While Healing
I’m better after yesterday. Thank you, everyone, who reached out to me. I went to dinner with my amazing sister-in-law, Amy tonight and she even shared her chocolate-fudge-brownie-whipped-cream-drizzled-with-more-chocolate dessert thingy.
There’s no way the combination of Amy’s smile plus THAT brownie couldn’t cheer me up. I also had a very delicious dinner (pre-brownie) with amy at McGillicuddy’s in New Paltz.
Ana got her labs drawn at our family physician’s office in New Paltz at 8:30 a.m. this morning and was home by 9:00. She was impressed with the phlebotomist there who she said “got the vein on the first try” and also didn’t use tape to secure the cotton ball after she was done – she used this stuff that sticks to itself so it doesn’t hurt when you pull it off. Painful dressing removals have become a sore spot with Ana (pun intended) and I. Medical professionals, listen up – children have nerve endings. Ripping tegaderm off of their skin HURTS – I don’t care how much damn adhesive remover you use. If the dressing is bigger than 1×1 square inch, it’s going to rip a bit of flesh and hair off. If you don’t believe me, then experiment on your own arm hair and then get back to me.
Dr. Lucchesi (the local family physician) called me at around 4:00 to say they got most of the lab results and had faxed them over to Columbia – which was really nice of her because we didn’t think we’d get the results back until Monday. She gave me a few results over the phone and the liver test that we’re worried about is still high. Unfortunately Maria did not receive the fax as of 5:00 p.m., so we’re going to have to wait until Monday for the results after all. BIG FAT BUMMER. I had also spoken with Maria earlier and she said that the test results could mean a lot of things – they did not necessarily mean that Ana’s liver is in rejection. It could also be from the liver regenerating or producing excess fluid. Ana’s still doing well on the low sodium diet, and Maria added another diuretic to Ana’s drug regiment which she explained will work with the Lasix to help reduce the fluid in Ana’s abdomen.
So now, in addition to tracking sodium, medication and fluid intake, we’re also tracking Ana’s weight. She’d gained 2 pounds from Wednesday to Thursday, but she stayed the same this morning. I’m hoping that’s a good sign that the diuretics and low salt diet are doing their job.
Ana missed out on her school’s Valentine’s Dance today. She did have a visit from a good friend though, which cheered her up. It’s the first time a friend has come over since she’s been home. I’m seriously considering rallying (begging) the school to have a spring dance in May so that Ana can actually go to a dance this year. In a swingy little sundress. With a cute, pixie-short haircut. What do you say, Michelle?? Please, please, please!
Good night, everyone. And thanks, as always, for keeping me strong.