I’m keeping this post short and free of too many details (or emotions) per Ana’s request. We got the preliminary results back. Ana’s original tumor has recurred. Both abdominal masses matched the structure of the original tumor and were confirmed to be malignant. She also has 5-6 nodules in her lungs (maybe 1-2 mm – so, very tiny). There was also one in her neck but they’re not sure if this is part of the same disease process or just incidental (caused by a recent cold or something).
We’ll meet with an oncologist at Columbia (Dr. Yamashiro) next Friday. We’re probably going to switch to Columbia’s oncologist at this point. Although we love Dr. Hochberg and she’s been wonderful since the beginning, it’s just too much work to try and manage both hospitals. The hepatologist and oncologist will need to work closely together on this because we really have to protect Ana’s liver.
It’s extremely rare for myofibroblastic tumor to recur, and nearly unheard of for it to spread. I’m not sure there’s ever been a case like Ana’s where inflammatory myofibroblastic tumor required a transplant. Her hepatologist was speculating that since the tumor is inflammatory in nature, it’s possible the immunosuppression allowed it to return. But since there are virtually no cases of transplant patients with this type of cancer, they’re completely flying blind.
They may end up treating this (initially) with Celebrex and prednisone. I think chemotherapy is still on the table, but the original tumor didn’t respond to chemo and I really do NOT want to put Ana through that again for nothing.
I guess we’ll have some options next week when we meet with the oncologist. Here we go again…
By the way, Ana’s recovering very well from the biopsy and didn’t need any pain medication as of this morning although she’s still a bit sore.