Pediatric Floor – Day 9 – 9:50 p.m.
Ana was moved to a room on the pediatric floor last night at around 11:00 pm or so. Can I get a WOO HOO in the house??!! She Skyped me just so she could show me the room – which appears to be huge and comfortable, and also show me the bruises all over her arms from the I.V.’s which have all been removed (except one).
Her abdominal drain was also removed this morning and replaced with a different type of dressing which collects fluid, but is not deep within her abdomen. I don’t know if she’ll go home with that or not. She was very chatty online this morning, but I haven’t really heard much from her since then. Jim says she’s a lot more mobile and able to walk around, but she’s not allowed to leave her room because of the RSV. She asked the Child Life coordinator for some drawing materials, and she rented a movie on her iPad (Hotel Transylvania). I’m glad she’s feeling well enough to want to do stuff, and really wish she was allowed to leave the room.
I got a call from the social worker today about Ana’s prescriptions, which will need to be ordered prior to her discharge so we have everything she needs when she gets home. Apparently the total for all the prescriptions (a one month supply) was $2900. This does not surprise me because I have a high deductible insurance plan which zero’d out in January. I’d only met about $150 towards the deductible before Ana’s transplant. We’ve definitely reached our deductible by now, but it can take a while for all the hospital claims to be processed and reflected with CDPHP. Prescriptions are different – they get submitted to the insurance company via computer and charged to the patient immediately – which is why sometimes you get the bad news that your prescription costs $150 when you go to pick it up from WAlgreens, but you don’t actually get a bill from your doctor until three weeks after you see him (or her).
Anyway, I explained why this was happening to the social worker, and told her I was prepared to pay it (THANKS TO ALL OF YOU WHO HAVE DONATED). It makes me wonder though…what if I couldn’t pay? A terrifying thought. The social worker also told me that they were working towards the goal of discharging Ana tomorrow, but she didn’t communicate this to Jim so we’re not sure if that’s the plan. Also, Ana had to get a blood transfusion tonight because her red count is low and they want to send her home with a better count. I THINK this is a good sign in terms of her being discharged tomorrow, but at this point I am too traumatized by all of the events of the last week to expect much. I’m just happy that she’s feeling better.
The blood transfusion really upset me. One of the first things that happened the night that Ana was brought to Westchester (back in August when they discovered the tumor) was they needed to give her a transfusion because her counts were so low. I was terrified. It hurt her arm and took hours. It made me realize just how seriously ill she was. This time she is getting the transfusion as part of her recovery and while I conciously understand that, there is a part of my brain that is absolutely panicking at the thought of her getting blood – it’s like I’m in that tiny E.R. room in Westchester all over again – in complete shock.
I am going to drop Emily off at school tomorrow and go straight to the hospital. The plan is for me to stay with Ana so Jim can go home, but he will hang around for a while in case she gets discharged. If not, that’s okay. I packed a bag with enough comfy loungewear to keep me going for a few days if necessary. If you ever have to go to the hospital for a few days, let me know – I totally know how to pack for the occasion.