PICU – Day 7 – 6:00 p.m.
Ana’s still in the PICU because there aren’t any rooms available, but the steady reports I’ve been getting from Jim all day indicate she’s doing well. She walked around the nurse’s station today (a pretty decent walk) and was so excited that she texted me about it. I also saw she uploaded something to Instagram so that was good to see.
They finally took out the A-line about an hour ago. This line bled again last night and Ana had to change all her bedding and her gown at like 3 a.m. Jim said there was a lot of blood.
There is another pediatric hepatologist on this week with Dr. Kato and the four of them (Kato, Martinez, Ovchinsky and hepatologist #3) are all working closely to try and establish a plan for Ana. So far she is still on Lovenox, but since she’s clearly bleeding a lot, there is some talk of switching her to aspirin. The bleeding freaks me out, but the thought of her having a clot and having to go back to the O.R. REALLY freaks me out.
The other ongoing issue that Ana’s dealing with is constant drainage from her belly. She has a drain in there now which is pulling a liter of fluid from her stomach per day. Dr. Kato thinks that removing the drain will force her kidneys to process this fluid and it won’t be needed, but hepatologist #3 feels the drain is necessary. The hope is that this fluid will begin to resolve itself at some point soon. She needs to stay away from sodium, plus they may give her a diuretic which will help her kidneys process the fluid.
Jim said that she is eating a bit more, but not as much as he would like. Dr. Kato says this is normal and expected this soon after surgery. All things considered, she’s doing well and getting a bit stronger each day.
I took Emily to the mall today so we could get a few more supplies (and lunch) in preparation for Ana, including a small vacuum for the “cat room” upstairs. She watched far too much t.v. today while we were home and now I’m going to take her out to get a bite to eat (even though I’d planned to make her pasta). I’m still exhausted and hoping for a good night’s sleep tonight. I feel like I could sleep for days.