Scan Results from 1/13/17
Posted to Facebook on 1/16/17
Dr. Yamashiro called on Saturday with Ana’s scan results. It’s taken a monumental effort on my part to sit down and update everyone. I couldn’t bring myself to talk to Ana about it until yesterday afternoon, but I guess there’s no use waiting anymore.
Everything grew significantly. She has new tumors as well, though I don’t know where because I don’t have the scan report yet. The worst tumor is the one in her left lung. This had been 7 cm in September and it’s now 10 cm. It’s begun compressing her bronchus, obstructing airflow to that lung. It’s also likely going to cut off the blood supply to her lung, severely restricting her ability to breathe though the right lung will compensate…for a while.
The extent of her disease is enormous. Dr. Y feels that it’s too advanced to respond to any kind of treatment. He said it would be like trying to stop a freight train. She may live until her 16th birthday, she may not. She may surprise us though – as she’s been doing – and stay with us longer than that. I’m not sure she’ll survive 2017.
She can’t fly, so that hoped-for trip to someplace tropical won’t happen. We looked into taking the train to Florida and driving out to the Keys (the closest thing to the Bahamas) but it’s a 30+ hour trip and in her physical condition, I’m not sure it’s a smart move. I told her as much. I also told her it would keep her away from Roo for about two weeks.
We’re worried about her pain. She’s worried about her pain – and I reassured her (as much as I could) that we have Dr. Waldman with us in this and that Dr. Y said he felt her loss of breathing would be gradual – that she wouldn’t suddenly sit up, clutching her throat and gasping for breath. We’ve already seen her slowing down. That’s what’s been happening this past month. She’s sleeping more, tends to have bursts of energy throughout the day, then it’s back to resting.
Ana wants to continue going to school as much as possible. She wants to continue Rock Academy too. We talked a little bit about what’s okay to let go and she’s going to start with small things (she has a book she needs to finish for English that she finds excruciating…”so don’t read another word,” I told her…) I want to figure out a way that she can see friends without having to constantly go to Woodstock, so parents of Ana’s friends, expect me to reach out.
She’s afraid of being alone. So we have been surrounding her whenever she needs us – including Emily, who has always been an empathetic child. But Ana is also a person who needs her space, so we’re careful not to smother her, to back off as much as possible (I could be better at this…)
We have $2000 in her wish fund thanks to some recent donations and the fact that I’ve put about $500 into the fund over the last couple of months. I’m posting a link to it again because it will enable us to do things for Ana. At this point, that means buying her a few things she’s wanted, since she can’t travel very far. Specifically, she’s asked for a new camera (she lost her waterproof camera in the ocean when we went to the NJ beach house in June) and a MacBook Air – the first I can swing, the second is a lot of money and I’m thinking of asking the charity that was going to send us to the beach to do this for her instead (but whenever I suggest it, Ana gets very upset. She really wants to go to the beach).
In any case, here’s the link: https://www.paypal.me/AnaDooley
A few months ago, Ana told me that if there’s any money left in her account after she dies, she wants us to put it towards Emily’s college fund. She’s my sweet, brave girl. I love her so much.