Slowly Getting Better
Today has been a very low key day, which is really what Ana needed. She has done two full laps around the nurse’s station and is getting out of bed more easily, although she’s still feeling a lot of pain and she’s been taking it slow. She isn’t eating very well. The surgeon ordered parenteral nutrition given through her catheter because she lost a couple of pounds since the last time they weighed her (I think that was last Tuesday). This will supplement her nutrients until she starts to eat more and hopefully help her maintain her weight.
Ana was pretty sleepy today and I let her rest as much as possible. She slept through most of a visit with my parents and her aunt Amy, but when she woke up she was in better spirits than I’ve seen her in since before the biopsy. I am going to encourage her to sit with the tutor tomorrow and do some schoolwork. She’s been approved for one hour of tutoring per day which counts as one full school day. The hospital is also working with her school to set up some type of video conferencing so she can participate in class from afar. I can’t wait until that’s in place.
We learned today that Ana qualifies for Make a Wish – which apparently isn’t only for terminal children anymore (the look of horror on my face prompted the social worker, Rose, to hurriedly explain that). According to Rose, they’ve been trying to shed that image for years. So that’s kind of exciting. Ana’s always wanted to go to Hawaii – that was the first thing that came out of her mouth when asked the question, “What would your wish be?” We’ve never been able to afford a real vacation.
It looks like we won’t get the biopsy results until late in the day tomorrow. I’m not getting my hopes up this time. I’ll just try to be patient even though it’s SO hard.