“Worry does not empty tomorrow of its sorrow. It empties today of its strength.” – Corrie Ten Boom
Ana’s latest labs (from yesterday) showed that her liver enzymes are stable. AST/ALT were slightly below and slightly above (respectively) what they were last week. The GGT was down to 163 (this is still WAY above normal, but it’s going in the right direction). Even though I keep typing these enzyme acronyms, I really don’t know what they mean. It reminds me of marketing meetings I used to attend years ago, where everyone would drop buzzwords and acronyms and no one knew what the hell anyone was talking about – but we were all too afraid to admit it.
AST, ALT, GGT – I HAVE NO IDEA! Is one more important than the other? I’ve tried to research this and Google seems mystified about it as well. I suspect I need to go to medical school to solve this riddle. Well, the important thing is that they’re stable which means Ana’s stable which means I can be a little less crazy this week.
Ana’s currently in between viral illnesses (hooray!) and is pretty healthy. Her cough from last week is nearly gone. My main concern is the side effects she’s experiencing from prednisone.
She’s still on 20 mg of prednisone and they aren’t reducing that dose this week (as of today). The symptoms she’s experiencing are pretty intense – plus steroids have been linked to growth delays and she is the shortest kid in her class. I emailed Dr. Martinez about this and she confirmed that steroids can cause growth delays, but she also said that Ana’s likely experienced a delay in growth due to her illness and lack of good nutrition for so long (she was underweight for a long time and even when she gained weight while on chemo, the tumor stole a lot of her nutrition.)
We are in the midst of a reprieve. I recognize that. I am making a focused and concerted effort to enjoy this. What is worry? How is it helpful? I’m going to miss out on all of the good if I keep trying to prepare myself for the next crisis.
Ana was absorbed in a book tonight and I curled up next to her and read with her. I’m grateful she loves to read. I think the ability to get utterly absorbed in a book is a gift, and I am so glad that I can share that with her.