10 Comments So Far

  1. Oh Jackie – what an ongoing nightmare this medical insurance is but I am so glad that the doctors are willing and able to work wit you and will intervene on your part. How nice it is to hear of someone taking time to really help people – at least try to as I know that it hasn’t happened yet. On a positive note, Natasha tells me that Ana will rejoining them at school for a while – she is so excited. Wishing you all the good fortune you need right now to get the approval through and the process started. Take care, Mary-Ann

  2. Wow, I never saw this coming. It’s so easy to feel jaded about ALL of somethings/someones, and yet here was this: “Well, Jim and I were in for a big surprise. About 20 minutes after we got to the infusion center, Dr. Rosencranz and Dr. Wu (the transplant surgeon) showed up to meet us there!”

    Such strength and power in this post, Jackie, including staying open to the gifts along the way. Raging and hoping right along with you. xoxo

  3. Karma can be ugly payback. Dr. Douchnozzle will get his one day.

    Jackie, when this is all behind Ana and the family, you MUST write about this experience. If any legislator today STILL believes that our healthcare system doesn’t need a serious overhaul, this ought to convince them otherwise. This is an incredible story — I’m so sorry that you, Ana and the rest of the family have to ensure all of this stupidity. To the outside world, the course seems very simple: get Ana the treatment she needs with the best possible team of professionals. Wouldn’t we consider this a MINIMUM course in ANY other business transaction? Isn’t the care and well-being of a child exponentially more important??

    Go get ’em, tiger.

  4. RAAAAAAAGGGGGGEEEEEEE!!!!!! In my humble opinion, I think you’re taking the very high road by NOT posting this douchnozzle’s name. I mean, really, if he feels so strongly about denying a little girl life-saving surgery why not put his name behind it? He should be PROUD, right? Is it wrong I did a fist-pump reading about the doctors getting in this? I hope they wipe the floor with him.
    And I hope the karma that comes back to bite this man is Ana growing up to be something SPECTACULAR and this man is in a position someday where he needs help. Can you just imagine?!?! Ana does something life-changing that protects or saves him or one of his loved ones and he comes to her a sniveling mess thanking her for saving what was precious to him. Ana gets the pleasure of telling him she’s there at his moment of need because of the doctors who saved her life when she was 11. Because other wise some wanker she’d never met who headed a for-profit health in$urance company thought she was expendable.
    You go girl… xo

      • 🙂 So you took the high road, Ima take the low(ish) road – does this guy’s name rhyme with Jirk aRe Tannepon?

        I was at NYU yesterday getting adjustments for both boys and I was telling them what was going on with you… as you know, not all the same people that we remember. Mouths agape. I guess I’m so riled for you because I know what we go through with just the cleft stuff and all the deny, deny, deny… pay as little as possible, etc. Knowing how expensive that is it’s utterly frightening to know EVERY ONE OF US is a diagnosis away from the hell you’re going through.

        • I know that Shelley and Pat know because they’ve both commented or emailed me about it. Not sure about anyone else. It’s definitely an unbelievable story. Emily has an appointment at NYU in January when she’ll likely get (another) palate expander and possibly anterior pull headgear which she’ll need to wear for ANOTHER six months. We’re also holding our breath that she has more bone in her alveolar ridge – Dr. Cutting said he wasn’t happy with the amount of bone he saw after her graft last July and he wanted to give her more time to grow. Fingers crossed that she doesn’t need another graft 🙁

  5. Jackie, it brings tears to my eyes that these doctors are so personally invested in Ana. That would certainly make them the best ones for the job. I pray that they are successful in changing the insurance company’s mind.

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