Tribute to Our Support System
I am going to post all the info from yesterday (day 2 of the living donor screening process) – which is plentiful and overwhelming – but I’ll save that for later. There are some people I need to thank.
Thank you Liz – for practically letting Ana live with you all week and ensuring that she had the best snow day ever on Wednesday. I’m pretty sure I’ll never quite live up to your lunches now though.
Thank you Caroline – for taking care of Emily and, as always, welcoming her into your home. We haven’t been able to reciprocate much and I feel bad for that – Coco is always welcome here too.
Thank you Janne, Amy and Stefan for working together to ensure that both girls got where they needed to be, and that they always, always, always have a home away from home. You are our foundation.
Thanks to Kathy for coming with me for an extremely long day yesterday (and to Mike, for letting me have Kathy). Emily was supposed to sleep over at Caroline’s house again on Thursday to Friday night, but she had a bad cold and I just didn’t want to do that to her, or to Caroline. Trying to secure back up coverage for Emily that did not involve her spending the entire day in school (because she was sick) was complicated, so I told Jim to stay home with her and I went into the city and my many appointments with Kathy.
Yesterday included appointments with my surgeon, hepatologist and an independent physician – as well as a chest x-ray, EKG and MRI. I knew I wouldn’t be able to focus on anything the physicians said if I was worried about Emily.
Kathy drove me into the city (enabling me to avoid one of my key phobias – driving myself into the city) and stayed with me the whole time except for a couple of the exams. She even sympathy-starved herself (I couldn’t eat for six hours before the MRI, which meant no food after 9:30). She took notes, asked questions and was my advocate.
If it actually does come down to Ana and I both being in surgery and recovery at the same time, this week really exposed some of the flaws in our plan. We will NEED to pull on friends and family more than we ever have in our lives – asking people to help out more than ever before. That’s hard for me. Like really, REALLY hard – but I’m feeling the love and that is so amazing. It’s the light at the end of this crappy, crappy tunnel.
Yesterday was long and exhausting, but I didn’t worry one moment about the girls because Jim was home. Ana even got to sing in her school’s Winter Arts Festival – which she was a nice last minute surprise (she didn’t want to go if Jim and I were both not able to be there). Another stolen moment of happiness for her.