Update – PICU Day Three – 8:30 a.m.
I’ve been reading all your comments here and on Facebook and I know you are all here with me. When I sit down to write an update, it’s with all of you in mind. I just wanted to start out with that because it really is helping me get through this incredibly difficult time. Thank you, all.
They stopped one of the sedatives around 5:30 this morning in preparation for removing the tube. Ana is slowly waking up and when she is awake she is lucid for a longer period of time (5 – 10 minutes). This is good, but also frustrating for her because she can’t speak at all. The breathing tube goes through the vocal chords. She can’t even utter a sound and when she tries to move her mouth to tell me what she wants, the tube prevents her from fully forming the words, so I often can’t figure out what she’s saying. If I do figure it out (e.g., “get my ipod”), she’s exhausted herself and fallen back to sleep. She’s now asleep with her ipod in her hands. To all of Ana’s friends, she really wants to comunicate with you! Don’t be shy about texting her. Eventually she will respond, I promise.
The pediatrician on the floor already stopped by and said that Ana needed a couple more hours before they could consider extubating her (that was already 30 minutes ago). I feel like when it does happen, it will be around 11 or maybe even a little later. They want to make sure she can breathe on her own so they don’t have to intubate again. She just got her morning chest x-ray. Someone from ultrasound should be here soon to check for clots and bleeding.
Dr. Ovchinsky also examined Ana and said her labs looked good. They are watching for liver function so this is good news too. Each daily test produces anxiety and each positive result provides a moment of relief. The chest x-ray from yesterday was not entirely clear, but it hasn’t been because of the RSV virus. she is also unable to cough because of the tube, sonthey periodically suction out the excess fluid.
I have a special note to Lauryn – I read her your text this morning and I know she really wants to respond. She loves you too. I live for the day when I can take you both to the mall and let you shop for a few hours! By then, all the cute summer stuff will be out.