Update – PICU Day Two – 7:15 p.m.
Ana has been asleep pretty much all day, which is why I haven’t posted any updates since this morning. She had three sonograms to check for clots and bleeding and all of them were clear. There was one questionable spot on the third sonogram which turned out to be nothing (most likely) but they are going to watch it even more closely just to be sure.
She is still intubated and will remain that way throughout the night. Dr. Kato is being extra cautious because of the complication yesterday and also because of the RSV virus. She had another chest x-ray this morning and her lungs look good. The nurse has been cleaning her mouth out with a spongey toothbrush thing that also helps keep it moist and also giving her some sort of oral anti-fungal medication called Nyastatin this way. This is apparently unpleasant enough to rouse Ana from her drug-induced sleep. This happened twice, and each time it was utterly heartbreaking. She kept trying to talk but she can’t make a sound with the breathing tube in so she wanted to write but her arms are strapped to the bed to keep her from pulling the breathing tube out. The nurse let me free her hands so she could point at what was bothering her but instead she did the universal double thumb motion indicating she wanted to text me something on her ipod. The problem with that was that she didn’t even have the strength to hold up her ipod and text. This is because she’s super drugged up. By the time I was even able to get the iPod into her hand, she was practically asleep again.
This Orwellian nightmare happened twice which is one of the reasons I haven’t had the heart to post an update. My hope for tomorro is that they stop the sedation at around 6:00 a.m. and let Ana wake up again. That’s the first step in removing the breathing tube. After that, the nurse said it can take 20 minutes to as long as four hours after the sedation stops before the tube can be removed.
Fun fact – the nurse told me there were six pediatric liver transplants performed here in the last two weeks and rigt now there are three kids in the PICU (including Ana) who are recovering from transplant surgery. So I guess we’re in the right place.