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Enzyme Ups and Downs Posted April 17, 2014

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Just a very quick update on Ana. Last week she had her labs drawn and they showed a marked increase in her liver enzymes (it

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Please Hold Posted March 30, 2014

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Many people have been asking me about Ana lately so I thought it was high time for a quick blog update even though we know

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Meet Jasper Posted March 14, 2014

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A friend of mine told me about Jasper, a local child who attends preschool at Bard. Jasper’s mom noticed a lump on his leg a

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Sometimes I browse fundraising sites like GiveForward and GoFundMe so that I can give a bit of money to families who need it so much.

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An Unexpected Reprieve Posted March 7, 2014

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I’m just going to blurt this out right up front. Ana had a follow-up CT scan at Columbia today and Dr. Yamashiro said that the

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Dear Parents, I hope you never get the news we got that fateful day back in August 2012, when an emergency room physician (looking shaken

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Lighting The Way Posted February 21, 2014

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The meeting with Dr. Yamashiro was really…encouraging. There was some kind of screw up and Ana wasn’t actually on the schedule, so he was rounding

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It’s Love, Not Crazy Posted February 19, 2014

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I spent all of Monday and Tuesday (and most of Sunday) digging around the internet to see if there are any experts on inflammatory myofibroblastic

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Snow Fun Posted February 15, 2014

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After my last post, you’re probably surprised I’m writing about fun in the snow but, honestly, I didn’t want to leave everything all doom and

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News Posted February 14, 2014

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I’m keeping this post short and free of too many details (or emotions) per Ana’s request. We got the preliminary results back. Ana’s original tumor

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