16 Comments So Far

  1. Hi Jackie and Jim,
    I took a chance and hope it is ok that I did. I know you can use all the support you can get and hopefully this would be more. I spoke to Stop and Shop and they are willing to do a fundraiser for Ana to raise money to help your family. However, they need to speak to one of you personally so they have verbal permission to use her name and whatever other information you are willing to share. They said they could even post the blog information. A friend had approached them last year for us when my son was diagnosed with some stuff and they raised almost a couple thousand for us. Anyhow, if you are interested you just need to call and speak to either Edie (manager) or Chsitina (assistant manager). The number is 256-0121.

  2. Can’t imagine the anxiety you are having with all this waiting. Sending love and prayers and love and prayers… wish there was more we could do to help.

  3. Hi Jackie,
    You don’t know me. I’m a friend of Janne’s and I sing with Debbie’s Women’s chorus. I’ve been following your posts almost from the beginning. You’ve touched my heart. I’m a Registered Dietitian Nutritionist in New Paltz. While I don’t work in a clinical setting, I’ve been trained in it. I would think Ana can be fed supplementally by her central line & shouldn’t need the additional procedure of a GI feeding tube. It could take a lot of pressure & concern off her & you to have her receive support this way. Please feel free to contact me by email and please know that this is offered only with the intention of trying to offer some help. I wish you all the very best that there is.

  4. I am just so frustrated for you guys. They need to put a rush on the biopsy results so you can start dealing with this. I know you have some other places in mind. We started out at westchester hospital and ended up at montefiore hospital where I felt more confident that they had my son’s issues under control. If you are not satisifed you can go anywhere but I know all you want right now is to know what you are dealing with. Also, my son has a feeding tube and although it is horrible for anyone to have one, it only has to be temporary and it would at least give her the nutrients she needs and maybe it can bypass the tumor. If you do have to get one there is one through the stomach and one that goes through the nose and down the esophagus, which doesn’t require surgery but is also very uncomfortable and has to be changed regularly and it will make her more self-conscious I’m sure. I know we don’t know each other but I had to reply. Also, we put Ana on our prayer chain at church (reformed church on hugeunot street).

  5. Dear Jackie, Jim, Ana, and Emily, I haven’t commented much but please know that I am here with you and you all are constantly in my thoughts and prayers. Kathleen

  6. Jackie, I just sent you an email, cc’ing a doctor at Sloan Kettering who is a close friend of my mother. He wants to help in any way that he can.

  7. Our thoughts are with you guys, as always, and we keep praying for strength for all of you, healing for Ana and wisdom for the doctors. It’s just awful that Ana is continuing to get sicker, and you still have no diagnosis. I hope you get answers SOON!! Let us know if there’s anything at all we can do to help.

  8. This sounds excruciating. Constant thoughts and prayers are with Ana, you and Jim, and the entire family. So many are keeping a vigil each day for Ana. I keep believing in the power of healing to bring her through this, and pray for real help very soon. Please take good care, Jackie.

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