10 Comments So Far

  1. Take time to celebrate the quiet miracles that seek
    no attention.

    Be consoled in the secret symmetry of your soul.

    May you experience each day as a sacred gift woven
    around the heart of wonder.

    — John O’Donohue from “To Bless the Space Between Us: A Book of Blessings”

    Our family sends you much love!

    Carrie, Doug and Maitreya

  2. Are you freaking kidding me? Well, hooray for low-grade (who knew that would be some sort of good-ish news)…

    Alright, well I love that this dumb, big, fat, beautiful, ridiculous, ugly, mysterious tumor at least has a name. And I’m glad that steroids are expected to keep it in check.

    I love hearing that Ana felt chatty. That’s awesome.

    Sorry about how you feel like your work is taking a hit right now, that sucks.


  3. we are so grateful that healing is moving forward. And I echo the thoughts that you are working very hard on your family and though that may not fulfill deadlines it is a huge job. Sending all kind thoughts to you all.
    Susan Bryan Hudson

  4. Jackie, Jim, Ana, Emily, and family: When I read that Ana was “in an extremely chatty mood,” it made me smile. It’s a very happy thought! When Ana and Emily are in full chatty moods, it’s one of the wonders of the world. I hope Ana slept well last night. I still shake my head and feel in disbelief at the suddenness of all of this since that day, so I can only imagine your own feelings when you say you can’t believe it’s been nearly a month in the hospital.

    At least now you have a diagnosis and progress can happen, her treatment can begin, and she will be on the road to healing. I looked up inflammatory myofibroblastic tumor in Google Scholar, too, so that I could understand more. (Of course, most of it was beyond me.) Like so many others, I am here each day hoping to stand by you, continuing to send prayers, love, and thoughts of healing to Ana and you all.

  5. Hi Jackie, Jim, Ana and Emily. Thank goodness you now have a diagnosis and the path ahead is becoming clearer. Thanks for all the updates. I am so glad that Ana is in better spirits. Just wanted to let you know that you are all in my thoughts, take care and try to rest when you can, mary-Ann

  6. So glad they’re getting closer to the end of the first part of this journey (and then the beginning of a new part of this nasty life-ride). Snails? Oh man Jackie… XO

  7. Hi Jackie,

    Of course you can’t work. My goodness, no one could. You are working hard though, at being an amazing support to your daughters. And Ana’s being chatty and clear is largely because of that.

    I have also taken prednisone. As I recall it has mood-lifting properties (I remember my dr telling me I had to go off of it very slowly so as not to crash). This might be a slight side benefit to the prednisone.

    Healing thoughts and sweet wishes from Caroline, Coco & Roberto

  8. Thank GOODNESS you finally have a solid diagnosis. At least this chapter of the waiting is behind you. Who could work with all this going on?? I continue to send healing thoughts Ana’s way, and I know you’re all relieved that even though there is a malignancy, it’s not likely to spread, and there is a clear course of action ahead. Progress!

  9. Wow. So much to take in. There is no way I would be able to work, either. You are doing such an amazing job. I hope the steroids start to make Ana feel better and that the liver comes quick! I am grateful Ana has such amazing doctors.

  10. I’m sorry you are once again playing the waiting game, but at least they have started a course of treatment and things are moving in the right direction. I’m glad Ana handled the first round of steroids well. Hopefully it WILL make her feel hungry. That would certainly be a good thing in this case. I can’t even imagine trying to develop any sense of normalcy with all that is going on. Hang in there, and call on your support system whenever you need us.

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